During a large-scale national study, led by Children's Hospital Boston and the University of Southern California revealed that half of US children in need of special care, get it from family members free of charge.
In a study published in the journal "Pediatrics" on December 27 for the first time calculated the unpaid time parents taking care of children, and lost revenue due to sickness.
Compared with previous decades families of children with chronic illnesses carry a lot more health problems in the home, on the care and feeding to physical therapy. Care at home is becoming more difficult because many children with chronic illnesses survive, and the hospital stay is reduced. About 20 percent of families have at least one child with special medical needs.
In the new study, the researchers analyzed the data of 2009-2010 and found that the average child with special needs receive 5.1 hours of care per week from family members and a total of 1.5 billion hours on the national level. For some diseases, the above figures:
- Cerebral Palsy: 14.4 hours per week;
- muscular dystrophy: 13.8 hours per week;
- Cystic Fibrosis: 12.9 hours per week;
- mental retardation: 11.2 hours per week;
- head injury / concussion: 11.9 hours per week.
12 percent of children received 21 or more hours a week family care. Subjects were Latinos from poor families up to 5 years.
The study found that breadwinners year refused to $ 3,200 profit per one child. The cost of a nurse in this case was 6400 dollars a year.
"Children with chronic illnesses require a lot of care, and hiring a nurse can be very expensive for a family, - says John Romli, economist and lead author of the study -. To take care of the child, families are experiencing financial and emotional stress of declining profits. "
Researchers suggest some ways to help families: paid for child care programs, better coordination of assistance, short-term hospitalization and visits to patients at home.
Scientists believe that the need to improve the level of training of family carers and to provide them with more support.
Source: http: //medicalxpress.com/news/2016-12-national-documents-family-provided-medical-children.html